Insta
Punjab And Haryana High Court Seeks Centre’s Decision On National Policy For Treatment Of Rare Diseases In Six Months
Representative image. (ERIC PIERMONT/AFP/GettyImages)
Passing its order in a PIL case, the Punjab and Haryana High Court has given the central government six months to come up with a decision on the National Policy for Treatment of Rare Diseases, reports The Indian Express.
The court had taken suo moto cognisance of the PIL in 2015, in a matter relating to a widow’s three children who were all suffering from a rare condition known as LGB syndrome. The mother was unable to provide them with adequate treatment as she lacked the financial means to do so. The court was informed that two of the children later died.
The original policy had proposed setting up an initial Rs 100 crore fund in order to finance the treatment of rare medical conditions.
Introducing ElectionsHQ + 50 Ground Reports Project
The 2024 elections might seem easy to guess, but there are some important questions that shouldn't be missed.
Do freebies still sway voters? Do people prioritise infrastructure when voting? How will Punjab vote?
The answers to these questions provide great insights into where we, as a country, are headed in the years to come.
Swarajya is starting a project with an aim to do 50 solid ground stories and a smart commentary service on WhatsApp, a one-of-a-kind. We'd love your support during this election season.
Click below to contribute.
Latest
